About
Our first documentary ‘My Dancing Eyes’ explores what it’s like to live with Nystagmus, a visual impairment that has an incident rate of one in 1000 births.
Using emerging forms of filmmaking backed by our technology first approach our participants weighed in about daily life living with the eye condition.
Our film reached a global audience and has received praise from influential voices in the Nystagmus community and local media.
“Congratulations on putting together such an information piece.” said Sue Rickets of the UK Nystagmus Network.
Our documentary also featured in the 2020 Nystagmus Open Day hosted by the UK Nystagmus Network.
stream
This documentary is avaliable to stream for free, anytime via YouTube, Vimeo and Facebook. You can also find it featured on the UK Nystagmus Network YouTube account.
media coverage
- NBN News (9news)
- ABC Radio Newcastle
feedback
Melanie Padilla, Artist with Nystagmus
“My name is Melanie Padilla. I’m from California. I’m 23 years old and I have Nystagmus. I’d like you to know that “My Dancing Eyes” has helped not only my friends and family to have a better understanding of what’s it’s like to live with Nystagmus. It has also helped me grasp the fact that I’m not alone in this journey and that we are all a part of a community of people that in my belief aren’t impaired or challenged but on a much better note are blessed. Thank you for inspiring me and so many others. You single handedly (obviously with a great team) brought awareness upon a topic that is hardly understood or coped with. Thank you and God bless.”
MELIHA SWHOVIC, Mother
I am in Tears, Thank you for making this documentary and educating the world on Nystagmus.